Survey
Quarterly Survey: ALS Treatments and Biogen's Qalsody (tofersen) July 2024
Ticker(s): BIIB, Amylyx Pharmaceuticals, Mitsubishi Tanabe Pharma AmericaThe survey includes 20 neurological disease specialists.
How many patients with ALS do you have under your care?
How many SOD1-ALS patients are in your practice?
How familiar are you with Qalsody (tofersen) and the data to date?
How would you best describe your practice?
How many of your SOD1-ALS patients do you consider eligible for Qalsody (tofersen)?
How many of your SOD1-ALS patients do you currently prescribe Qalsody (tofersen)?
How many of your SOD1-ALS patients started Qalsody (tofersen) in the last 30 days?
How many of your SOD1-ALS patients discontinued Qalsody (tofersen) in the last 30 days?
How many of your SOD1-ALS patients do you expect to start Qalsody (tofersen) in the next 30 days:
What percentage (%) of your SOD1-ALS patients do you expect to prescribe Qalsody (tofersen)?
- In 1 year
- In 3 years
- In 5 years
How would you rate Qalsody (tofersen) on the following (where 1 is low and 5 is high)?
- Safety
- Efficacy
- Patient access
- Patient willingness to try
What barriers or challenges, if any, have you observed or do anticipate with Qalsody (tofersen)?
How does/will cost specifically impact access to Qalsody (tofersen) for patients with SOD1-ALS?
In your opinion, how effective is Qalsody (tofersen) in treating SOD1-ALS compared to other treatments? Please be specific.
What line of treatment would you consider Qalsody (tofersen) for patients with SOD1-ALS?
Do you plan to increase your use of Qalsody (tofersen)?
Why or why not? Please be specific.
Please elaborate on your view of Qalsody (tofersen). Please be specific.
On a scale 1-10 (where 1 is low and 10 is high) how excited are you for Qalsody (tofersen)?
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