Survey
Quarterly Survey: ALS Treatments and Biogen's Qalsody (tofersen) April 2024
Ticker(s): BIIB, Amylyx Pharmaceuticals, Mitsubishi Tanabe Pharma AmericaThe survey includes 20 neurological disease specialists.
How many patients with ALS do you have under your care?
How many SOD1-ALS patients are in your practice?
How familiar are you with Qalsody (tofersen) and the data to date?
How would you best describe your practice?
How many of your SOD1-ALS patients do you consider eligible for Qalsody (tofersen)
How many of your ALS patients dp you currently prescribe Qalsody (tofersen) ?
How many of your ALS patients started Qalsody (tofersen) in the last 30 days?
How many of your patients with ALS discontinued Qalsody (tofersen) in the last 30 days?
How many of your SOD1-ALS patients do you expect to start Qalsody (tofersen) in the next 30 days:
What percentage (%) of your SOD1-ALS patients do you expect to prescribe Qalsody (tofersen)?
- In 1 year
- In 3 years
- In 5 years
How would you rate Qalsody (tofersen) on the following (where 1 is low and 5 is high)?
- Safety
- Efficacy
- Patient access
- Patient willingness to try
What barriers or challenges, if any, have you observed or do you anticipate with Qalsody (tofersen)?
How does/will cost specifically impact access to Qalsody (tofersen) for patients with SOD1-ALS?
- No impact
- Minor impact
- Moderate impact
- Significant impact
- I am not sure
In your opinion, how effective is Qalsody (tofersen) in treating SOD1-ALS compared to other treatments?
What line of treatment would you consider Qalsody (tofersen) for patients with SOD1-ALS?
Do you believe Qalsody (tofersen) is effective in treating patients with SOD1-ALS?
Why or why not? Please elaborate on your response above.
Please elaborate on your view of Qalsody (tofersen).
On a scale 1-10 (where 1 is low and 10 is high) how excited are you for Qalsody (tofersen) in treating ALS?
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