Expert Interview
Discussing new treatments for FA with members of the Friedreich's Ataxia Research Alliance (FARA)
Ticker(s): RETAInstitution: Friedreich's Ataxia Research Alliance
- Chief Executive Officer of the Friedreich's Ataxia Research Alliance.
- Previously worked as a genetic counselor at CHOP developing a special interest in neurogenetic conditions; shewent on to establish and coordinate clinical and research programs for individuals and families diagnosed with Friedreich Ataxia (FA) and other neurodegenerative diseases.
- Led FARA's efforts to establish clinical research infrastructure and clinical trial readiness, grown the research grant program from funding <1M annually to >6M annually, led efforts to engage bio-pharma industry in FA drug discovery and development, and ensured highly efficient and transparent organizational growth and development.
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