Expert NetworkExpert InterviewNVS

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Discussing various investigational therapeutics for DM1, including del-desiran, SRP-1003, PGN-EDODM1 and DYNE-101

Executed on:Apr 10, 2026 1:30 PM EDT
Call Duration:30 minutes

Expert Profile

ExpertBlinded Expert
Institution: University of Washington
  • Associate Professor of Neurology at University of Washington and a researcher at the Seattle Wellstone Center.
  • Manages ~15 patients with myotonic dystrophy type 1 (DM1).
  • Researches focuses on inclusion body myositis, facioscapulohumeral muscular dystrophy, and ALS (funded throug the NIH), and clinical interests focus on neuromuscular disorders, such as motor neuron disease (ALS), myasthenia gravis, peripheral neuropathies and muscular dystrophies including FSHD.

Interview Goal

discuss clinical data seen so far in investigational DM1 drugs

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